Monday, February 28, 2011

Finally some good news. Possible delayed response from Ipilimumab.

I had a doctor's appointment on Friday which for the first time since starting this melanoma battle I got some good news. I though that Dr Spira might start doing jumping jacks in the exam room as he over and over again expressed how good that I looked. The last time time he had seen me was right after my hospital stay where I was doubled over in so much pain that they had me drowned in all sorts of pain medication. At that appointment, he was talking about hospice care and he even called me "sick." His gave me his personal cell phone number to call him if I needed help while we were away on our Disney vacation, he was certain that he'd receive a phone call from me. He was telling a different story this time. He was really excited to see me in such good condition especially knowing that I've been greatly reducing my pain medication. You see, pain from cancer just doesn't go away. Unless, of course, the cancer is going away.

"Clinically speaking, from everything we see, I think you have received a delayed response from Ipilimumab. I now think that the drug is working.", I believe were his exact words.

The original timeline was for me to get another set of scans in the beginning of March as it is known that the drug can take some time to activate. It is also known that patients tend to get worse before they get better. This is the frustrating thing about Ipilimumab. The hope is that patients are not so sick that they can afford to get a little sicker in the first place. For many this is just not the case. I'll now go back to Washington Hospital Center and get another scan to find out for sure. If the results show that I am stable or that the tumors have in fact regressed, I may be eligible for another round of Ipilimumab.

This is extremely exciting news!! We've never had this kind of possitive news from the medical insitution. Sure they've been happy to see me before and unable to explain why I look so good so far into a melanoma diagnosis. Never have any of these doctors been able to tell me that they actually think something is working. This is exactly what I needed as it is once again refreshed me mentally for the continued fight. I will, of course, update again once I know the results for sure.

11 comments:

Bren said...

Thats great news!! Keep the faith and you'll beat this disease!

Olivia said...

This is absolutely great!! I am so happy for you! Great news!! : ))

Anonymous said...

It is the first time I write here but read your blog from the beginning. I wish you all the best in the battle with melanoma. I follow all the news about your medical treatment very carefully. My husband is fighting with melanoma and he was receiving the Ipilimumab too until they discovered mets to liver (probably it is also the result of the drug) so he had to stop. All you are writing is giving me a great hope and I wish you luck and keeping my fingers crossed. Todays news are really great. Waiting for the scans results. :)
Monika

Cris said...

WOOOOO-HOOOO Great News for a change...

this is paul said...

More Disney Magic perhaps?

this is dad

Sabrina Smith said...

oh oh oh oh!!!!! I can't finish my though!!! I have been thinking of you and wondering how you are and doing my psuedo/sabrina praying type thing for you and I am so happy to see this!!!!!!!!!!! Sending you more light and health!!! You keep it up, mister! I hug you and Amy from waaaay over here is cyberspace! You coming to Aiden's party this Saturday with everyone?? If so, I think you should get to decorate a super hero cape with the kids. You and John both!!!

Anonymous said...

I've just found your blog today. I must say, you looked whole lot more good looking compared to 2009. And it is already more then 12 month prognosis, isn't it?

Stay strong!

Laurie said...

WOO HOO! That is some SWEET music to my ears!!! It is GREAT to "hear" the positivity in your post and know that you are ready to continue to do battle against (stupid) cancer!!!!

Mike Brockey...you so ROCK MY WORLD! Thanks for sharing your success with all of us...this is a wild ride that we are sharing with you. I think we've made it over at least one of those very scary climbs on the roller-coaster and are enjoying the wind in our hair on the way down the other side. Are your hands in the air? Mine are!!!! (And I'm TERRIFIED of roller coasters!) :o)

Sending up prayers for more great news to be coming your way!

Love you, Brockey family!!

Laurie

Robert Scholl said...

Congratulations. That is incredibly inspiring.
Bert Scholl

Anonymous said...

Mike hasn't been on in months. I don't have a good feeling.

janene maguire said...

Hi Mike, Good Luck! My husband started the Braf Trial Drug 3 weeks ago out of Melbourne (nothing in New Zealand to offer) and he is doing amazingly well to date. His melanoma is aggressive and hopefully this will kick it to touch. Whatever we get we will take - maybe switch to Yervoy if the tumors start to grow again. Have heard some great results on this Braf Trial. He is Grade 4 too.